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    Home»Health»Millions May Have Long COVID – So Why Can’t They Get Diagnosed?
    Health

    Millions May Have Long COVID – So Why Can’t They Get Diagnosed?

    By University of SouthamptonMarch 17, 20258 Comments3 Mins Read
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    Long COVID Isolation Fear Concept
    A study of over 750,000 people found that Long Covid disproportionately affects disadvantaged groups, yet many remain undiagnosed. The condition continues to burden individuals and society, demanding better prevention and care strategies.

    Millions of people in England may be living with Long Covid without even realizing it.

    A large-scale analysis found that nearly 10% suspect they might have the condition but remain uncertain, often due to lack of diagnosis, stigma, or self-doubt.

    Many Are Unsure If They Have Long Covid

    Nearly one in ten people (9.1%) in England suspect they may have Long Covid but are unsure, according to a new analysis of NHS England survey data conducted by the University of Southampton.

    Researchers also found that 4.8% of respondents reported having Long Covid, with higher rates among individuals from disadvantaged backgrounds, certain ethnic groups, parents or caregivers, and those with existing long-term health conditions.

    The study, published today (March 18) in the journal Health Expectations, highlights ongoing disparities in how Long Covid affects different populations.

    The Unfair Burden of Long Covid

    Professor Nisreen A. Alwan, a leading Long Covid researcher and co-author of the study, emphasized the disproportionate impact of the condition.

    “This analysis adds further evidence of the unfairness of Long Covid, with people who are already disadvantaged in society more likely to be affected.

    “It also shows us that many people aren’t sure if they have it, and may need diagnosis, treatment, and support.

    “Long Covid is still a very significant issue impacting individuals, families, the economy and wider society. We need to do more to prevent it, diagnose it, and properly support people who are affected by it.”

    A Widespread Yet Uncertain Condition

    Long Covid is a chronic condition induced by COVID-19 infection that can have a significant impact on people’s daily lives. Symptoms include fatigue, feeling short of breath, ‘brain fog’, and heart palpitations, amongst many others.

    University of Southampton researchers analysed over 750,000 responses to the GP Patient Survey (England) 2023 to explore the prevalence of Long Covid, and the factors associated with both having the condition and being uncertain of having it.

    Why Some People Stay Undiagnosed

    They found that people aged under 25 years, males, people from particular ethnic minorities, and people without long-term conditions were more likely to be unsure if they had Long Covid.

    Men are generally less likely to seek medical advice than women, which could partly explain their higher level of uncertainty. The team also says stigma and self-doubt could discourage people from seeking a diagnosis.

    Raising Awareness and Bridging Gaps

    Mirembe Woodrow, who is studying for a PhD at Southampton and who carried out the analysis, said: “We were really surprised to find so many people weren’t sure whether they had Long Covid or not, and the study shows there is still work to do to increase awareness of the condition and remove barriers to accessing diagnosis, treatment, and support.

    “We don’t want Long Covid to be another factor that contributes to the widening health gap in the UK.”

    Long Covid Uncertainty Persists

    The most recent data from the 2024 GP Patient Survey indicates Long Covid prevalence and uncertainty are not declining (5.0% and 9.0%). Professor Alwan’s team intends to carry out further work using the survey to understand what could be driving inequality in prevalence, impact, and support for Long Covid.

    Reference: “Exploring Long Covid Prevalence and Patient Uncertainty by Sociodemographic Characteristics Using GP Patient Survey Data” by Mirembe Woodrow, Nida Ziauddeen, Dianna Smith and Nisreen A. Alwan, 17 March 2025, Health Expectations.
    DOI: 10.1111/hex.70202

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    COVID-19 Long COVID Public Health University of Southampton
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    8 Comments

    1. Boba on March 17, 2025 5:17 pm

      Because it doesn’t exist.

      Reply
      • tennisguy on March 18, 2025 6:19 am

        Bingo, there is no such thing as “long COVID”.

        In fact, there are already published studies, showing that “Long COVID” is actually linked to people having taken the vaccine.
        The correlation of people with “Long COVID” goes up with the number of “boosters” they had as well.

        Thats why they cant diagnose it. Because they are trying to label vaccine side effects and damage as something else.

        Reply
    2. Sydney Ross Singer on March 18, 2025 6:36 am

      This study and article are not really about Long-COVID. It’s about social inequality in healthcare. Note their concern is not about post-vaccination illness, or the features of Long-COVID.

      “Professor Nisreen A. Alwan, a leading Long Covid researcher and co-author of the study, emphasized the disproportionate impact of the condition. “This analysis adds further evidence of the unfairness of Long Covid, with people who are already disadvantaged in society more likely to be affected….We don’t want Long Covid to be another factor that contributes to the widening health gap in the UK.””

      Reply
    3. ERIC SANDERS on March 18, 2025 8:35 am

      Somehow, to protest Trump’s reelection, all the Democrats here, in White Plains, NY started wearing masks. I mean, for real, “I object to Trump.” The same way that from 2020 to this very day, they mask up when it’s an excuse to miss work or some important responsibility.
      The inverse of this article is the people like me, who took our covid tests, by removing them from the tube, and then NOT swabbing our noses, and testing negative. Did you all think I was going to shove something up my nose and give the results to anyone? I have several friends whose children, their teens now have enlarged hearts from the vaxx. This whole thing is going to start a further revolution.
      I can’t wait

      Reply
    4. Ralf Pareño Carreon on March 18, 2025 6:05 pm

      All

      Reply
    5. Natty Dred on March 19, 2025 4:27 am

      The comments claiming that vaccines cause long COVID, or that long COVID doesn’t exist, aren’t supported by evidence. Evidence shows that not only do vaccines prevent hospitalization and death from COVID, but they reduce infections as well as long COVID instances, and severity.

      https://www.nejm.org/doi/full/10.1056/NEJMoa2403211

      Reply
      • tennisguy on March 19, 2025 6:12 am

        You keep drinking that koolaid!
        Make sure to get your 5 boosters this year!

        Reply
      • AG3 on April 12, 2025 8:32 pm

        Yeah. A million of these vaccine deniers died at the end of the pandemic, begging for the vaccine with their last breaths. Refuting science is God’s work for them. See sorryantivaxxer website to see how they support each others in their delusions.

        Reply
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